Beginning in 1990, Arizona State University
began a study using DNA from the Havasupai Tribe in Arizona. Read the
articles at the links below. Discuss the importance of informed consent
in human subjects research.
Indian tribe wins fight to limit research of its DNA
From the New York Times (04/22/2010)
Havasupai case highlights risks of DNA research
From the New York Times (04/23/2010)
Informed consent and the ethics of DNA research
From the New York Times (04/23/2010)
Indian tribe wins fight to limit research of its DNA
From the New York Times (04/22/2010)
Havasupai case highlights risks of DNA research
From the New York Times (04/23/2010)
Informed consent and the ethics of DNA research
From the New York Times (04/23/2010)
Due Wednesday, December 12, 2012
Posts
10 comments:
I support "human subjects research" as long as they are being told what its for and are open and honest about whats going on. i dont think it's right to tell someone they are doing research for one thing and turn around and do something that has nothing to do with it. as long as people are aware of whats going on and they 100% consent to the research then i dont see a problem with it.
I support human subjects research. It's important that participants fully understand every aspect of the test, and if there are any type of ethical issues they are addressed. It is important that things are tested before they're given to people that are ill. In most studies, participants are closely watched and taken care of by professionals preventing terrible things from happening. If people aren't tested then how will we know what possible side affects may be and how would we prevent them.
Human Subject Research is a good idea but only for people who have a terminal illness that can be treated and find the results of a vaccine or medicine. They can use these patients to find side effects and find other cures for any other illnesses. The only thing I may have a problem is that the researchers are being focused, honesty, and taking special care of the patient they are testing. In other words I support Human Subject Research.
As with most things in life, courtesy and respect gets you more things than anything else. In the articles, people said that if they had been told that they probably would not have minded the researchers using their DNA. While I think that it is ludicris to have to site every possible way that a test result could be used, there is nothing wrong with a blanket statement asking permission to use the samples for other research projects in the future. Most people would not mind the fact that these samples are stored and accessible to researchers.
I support human subjects research! I think that people R money hungry and look for the first thing they can find to put a law suit on. I feel that they should be happy to know where they really originated from! AND if the researchers found something in one of the people that could affect everyone in a positive way or maybe if there was something found that could really save them all.....no one would be griping!Human research is necessary. Without it, we would know nothing!
Jeremy Taliman
I support the fact that the government says that my cells are not my property once I decide to give them away for research. Thats fair. What is not fair is taking advantage of people with half truths. You cant give the people a "broad explanation" of what the research is about just because you know that they are going to say yes. What if it was not DNA research? What if it was experimental drug testing or surgery? I bet that their "ethics" would be different. For example: You would be very thorough about the risks and benefits of surgery, so why wouldnt you be thorough about the research that you will be doing. One of the tribesman even said that they would have agreed to the research beyond the diabetes; if they had asked. How are you supposed to trust someone if they are giving you half of the truth? Im sure it was ok with them because they figured that no one would have noticed. To me, that is like when your parents first trust you with the car to go straight to the store and back; but instead you stop at your friends house. It doesnt make it ok to do something just because the rate of getting caught is not very high.
I can understand the need to do research on things and people.But do the right thing and DO the research on what is being researched on. Why the need to know when certain Natives came to what area of the land. We came, we're here and here to stay. Government..government, there going to do what and when the want it,we learned and still learning the hard way-Native Americans. The consent was for diabetes research leave as that.
Having done more then several human experiments with myself as a "Test Subject" i do not mind being one because i know exactly what i am admnistering.I can fully understand how people would not like to have their blood collected and used for a purpose other then what was told to them.I like all of the countless articles online about both sides of the argument of Human testing.But having have killed myself already once,I can understand while i am for human testing,why some people would be against it.
I definitely support human subjects research, however I think when the line of consent is vague and not concretely defined, than it is not surprising that this would happen, especially when you take into account the cultural weight and history of the people that you are testing or doing research on. I think the descriptions and limitations per testing need to be well defined and held up in order to really make some progress or obtain results that can help people.
Evan Redburrow said....
My respect comes so often, but once its earn. I believe a relationship with a Human Subjects research goes a long way. A company that tells you one thing and does another is file to court and lawsuit. Clearly Rearch programs need help in communications and ethics. If i did participate in any study i would ask for details and ask questions. Last thing i expect is a letterhead of my people in a paper or bullentin.
I am for human research. I'll support it!! Just be a man about it and tell me in my face of what the research is for.
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